‘A disease may be rare, hope should never be’ – Hunter Pageau, diagnosed with SMARD, Connecticut.
A rare disease is one which affects fewer than one in 2,000 individuals and most of these rare diseases are genetic. Here in Singapore, 2,000 – 3,000 people are estimated to have a rare disease where approximately 700 of them are children. Effective treatments for rare diseases are few and they tend to be high in cost and are required for life.
As Singapore’s only Catholic and not-for-profit general hospital, we commit ourselves to serve the Singapore community through year-long outreach initiatives. This year, as one of the anchor events in our community outreach programme, we are organising a community carnival with Community Chest to raise awareness towards rare diseases and the recently launched Rare Disease Fund (RDF), a charity fund that seeks to provide long-term financial support for patients with rare diseases requiring treatment with high cost medicines. The RDF is supported by the Ministry of Health, and administered by KK Women's and Children's Hospital.
Join us as we embark on a mission of hope to raise awareness on rare diseases through the carnival, or donate to Community Chest to support the RDF!
Community Carnival Details
Date: Sunday, 3 November 2019
Time: 8.30am to 2.00pm
Venue: Punggol Town Square
Guest-of-Honour: Mr Edwin Tong, Senior Minister of State, Ministry of Law and Ministry of Health
The community carnival includes an array of activities including mass exercise workouts, games, booths, exhibitions and performances where 100% of the proceeds raised will be channelled towards the RDF. See you there!
Learn more about the RDF here.